2019 PREEMIE PARENT SUMMIT
Agenda Now Available!
My NICU Network is proud to announce the publication of a paper written demonstrating the efficacy of the course we co-created to educate NICU staff on how to provide psychosocial support to NICU parents. The paper has been published online in the journal Advances in Neonatal Care.
Who Are We?
Preemie Parent Alliance is a network of organizations offering support to families of premature infants. We are the only professional association for NICU Parent Leaders in the United States. PPA provides a platform for NICU Parent Leaders to come together as a collective voice representing the needs and best interests of NICU families in all facets of healthcare policy, care guidelines, advocacy, education & family support.
Our Mission is to Champion the NICU Parent Voice
ADVOCACY
Our organizations are dedicated to representing the needs and best interests of NICU families in all facets of healthcare policy, care guidelines, advocacy, education, and family support.
CULTIVATING LEADERS
PPA represents leaders who have turned NICU experiences into ways to touch the lives of NICU families. Offers a way to network with parent leaders, share best practices, mentoring opportunities, & meaningful relationship building.
REPRESENTATION
By collaborating and engaging with stakeholders in the Maternal Infant Health community, PPA members are committed to ensuring our most fragile population has every opportunity to thrive.
EDUCATION
Preemie Parent Alliance has partnered with Patient+Family Care and the National Perinatal Association to develop a superior quality NICU Staff Education course.
Family Integrated Care
is an approach to care in the NICU that fully involves the parents in all aspects of the baby’s care. The PPA believes this approach to the care of the infant and family should extend to all guidelines, research, policy, advocacy, education, and support where nothing is created for infants and their families without an equal partnership with NICU Parent Leaders.
Meet Our Members
Membership Opportunities
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PPA SPEAKERS BUREAU
Professional Speakers with Unique Experiences & Expertise
“Quality of life”: parent and neonatologist perspectives
"NICU families were identified in two ways. First, Internet searches were conducted that generally identified active support or advocacy groups that specifically targeted NICU families. “Family” for the purpose of this survey was defined as “any individual who...
NPA+NANN+AWHONN Consensus Statement
With a newfound appreciation for what it means to be an "essential caregiver" - the National Perinatal Association (NPA), Association of Women's Health, Obstetric and Neonatal Nurses (AWHONN), and National Association for Neonatal Nurses (NANN) join together to...
NICU Baby’s Bill of Rights
We’re thrilled to announce the unveiling of our newly revised & updated NICU Baby’s Bill of Rights! NPN is committed to being mindful of the evolving needs of NICU babies & families. We’ve reevaluated our original NICU Parent's Bill of Rights and concluded...
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Our Sponsors
The views and opinions expressed by our members, affiliates, sponsors, and supporters do not reflect those of our organization, Board of Directors or staff. Nor does membership with or support of PPA reflect PPA’s implicit endorsement of any programs, products, or services provided by our members, affiliates, sponsors, and supporters.