NPN Hill Day: Elevating the NICU Parent Voice
Join us for the Second Annual NPN Hill Day, happening June 10–11, 2026, as NICU Parent Leaders and advocates from across the country come together in Washington, D.C. for two powerful days of action, connection, and impact.
This is more than an event — it’s a movement. Together, we’ll champion critical issues affecting NICU families, including parental presence in the NICU, access to mental health resources, access to donor milk, paid leave, and stillbirth research. We will meet directly with policymakers, share our stories, and push for meaningful, lasting change that supports families at every stage of their journey.
Your experience matters. Your story matters. Your voice matters.
Don’t miss your chance to be part of this inspiring and impactful advocacy experience.
NPN Hill Day 2025 by the numbers
What is NPN Hill Day?
NPN Hill Day brings NICU and bereaved parent leaders, allies, and advocates from across the country to Capitol Hill to speak directly with congressional offices on behalf of families who need us most.
Which Issues Are NPN Focusing On?
This year, we’re advocating for:
- House Resolution 236: NICU Baby’s Bill of Rights
- Leave policies for NICU families
- Shine for Autumn Act: Stillbirth research funding
- Donor human milk safety
Who Should Attend?
Anyone who cares about improving outcomes for NICU families — NPN members and non-members alike, including staff, volunteers, ambassadors, peer mentors, and community advocates. Share this widely.
I've Never Done This Before. Can I Still Attend?
Absolutely!! And don’t worry! We will provide training on how to tell your story in an impactful manner in 3 minutes or less! We will also provide bill briefings on the items NPN is focusing on, which will include talking points and leave-behind materials.
What Your Registration Includes:
- Welcome Reception & State Delegation Meet-Up – Connect with fellow advocates from your state, divide roles for your meetings (story, stats, and the ask), and head into advocacy day ready to go
- Closing Reception – Celebrate your impact and build lasting connections
- Advocacy Training – Arrive prepared and confident to deliver your message
- Meeting Packets – Organized talking points and issue briefs, ready to go
- Printed Leave-Behinds – Professional materials that keep your message front and center
- Pre-Scheduled Meetings – We handle the logistics so you can focus on advocating
Agenda
Times and Location Subject to Change
5:30 – 6:00 pm Yotel Washington DC – Grand Hub West
- Registration & Cocktails – enjoy hors d’oeuvres & beverages of your choice (cash bar).
6:00 – 6:20 pm Yotel Washington DC – Grand Hub West
- Welcome Remarks & Receive Final Meeting Schedules
6:20 – 8:00 pm Yotel Washington DC – Grand Hub West
- State Delegation Team Meetings – the room will be available until 8:00 pm to meet with your team.
Dinner at Your Leisure.
7:30 – 9:00 am Yotel Washington DC – Grand Hub West
- Breakfast Buffet
Travel to Capitol Hill
Connect With Your State Delegation
9:30 am – 4:30 pm House and Senate Buildings
- House & Senate Meetings Per Your Individualized Schedule
4:45 pm Location TBD
- Group Photo
5:30 pm Rayburn House Office Building #2060
- Group Debrief & Reception with Congress
YOTEL Washington DC
415 New Jersey Avenue, NW, Washington, DC 20001
Overnight parking at the hotel is $60 per night.
We are grateful for the generous support of our sponsors!
Stewards for Change Sponsor
Voices for Change Sponsor
Voices for Change Sponsor
Advocacy Partner
Social Media Toolkit
Help us spread the word! Use this advocacy toolkit to help raise awareness and encourage your followers to send a letter of support for H. Res. 236, the NICU Baby’s Bill of Rights. Together, we can amplify the voices of NICU families and advocate for compassionate, family-centered care policies that protect the rights of babies and their families.
Download Graphic
Download Graphic
Every NICU family deserves compassionate, family-centered care and the ability to be present with their baby during one of the most critical times in their lives.
That’s why we support H. Res. 236 — the NICU Baby’s Bill of Rights.
Join us in advocating for NICU babies and families by taking a moment to send a letter of support to Congress. Your voice can help protect and strengthen the rights of families navigating a NICU stay.
Take action here: https://bit.ly/hres236
#NICUBabysBillOfRights #NICUAwareness #FamilyCenteredCare #NICUFamilies #SupportNICUFamilies
#NpnHillDay
#NicuVoicesOnTheHill
#NicuAdvocacy
#NicuBabysBillOfRights