Hope for HIE
Hope for HIE improves the quality of life for children and families impacted by neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy through awareness, advocacy, education, research and support.
Services Provided
One-on-one peer Support in NICU (in person)
One-on-one peer Support Post NICU (in person)
One-on-one peer Support in NICU (virtual)
One-on-one peer Support Post NICU (virtual)
One-on-one Bereavement peer Support (virtual)
Support groups in NICU (Virtual)
Support groups post NICU (Virtual)
Support groups bereavement (virtual)
Sibling Support (in person)
Sibling support (virtual)
Other family members support (i.e. grandparents) (virtual)
Digital Education/Support (apps)
Education Materials Created by your Organization, Available for free
Video/Webinar Learning Created by your Organization
Audio/Podcast Learning Created by your Organization
Care Packages
Provider/Clinical Education/Training
Research
Book Author
Family Coaching from Certified Practitioner
Other – Child Life programs and services, program for children living with HIE ages 7-17
Services Provided Are Community and/or Hospital Based?
Presence in Hospital & Community-Based
Location
Michigan
Where are your services provided?
US (all), Canada, Australia, UK/Europe
Where do you provide your support services?
In hospitals we contract/work with
Virtual (peer-to-peer mentoring and/or support groups, online, by text, through virtual support groups)
In our local community (resources, events, meet ups, & media)
Are your services available to any family seeking support?
Yes, we are able to serve families regardless of where they live or which hospital they are connected to
At which point in a family’s journey do you provide support services and resources?
In NICU
Post NICU stay
Are your services specific to families navigating a specific diagnosis (e.g. NEC, HIE) or a specific circumstance (e.g. multiples, loss)?
Yes – HIE